Here is another update about baby Madeleine....

"Hey, I wanted to update you. They took out the jp drain and edv tube from her head. She is doing Fantastic!! She looks like a reborn child, her eyes are amazing how they are wide open and bright. She has always had a look of being dopey. She is holding her head up smiling and laughing. What a little trooper she is.They are tough I don't think I could have held up like she has ,it's just amazing how tough children are.We are being released today from the hospital but we are staying in a hotel close by the hospial for a few days,just to be on the safe side. Prayer works and God is GOOD!! GOD BLESS! Wendy"

Thanks to all of you who have been praying for her! It is wonderful news that she is doing so well!

Things are going well here. Amanda had her last ever dose of Topamax last night so she will be totally off Topamax from here on out. Our next step is to start weaning the Diazapam (Valium) so that she can get off of that. It takes a lot longer to get off Diazapam because it is addictive so it will probably take around 6 months to be done with it. Once that happens, we will only be on Keppra and hope to only have to take it twice per day. That would really benefit every one's sleep schedule since right now, we have to take Diazapam every 8 hours, so the last med of the day is taken at 11pm and the first one of the next day is at 7am. Amanda has handled the weaning of Topamax really well.

She has been a nut lately. Today she gave Dan a nice puncture wound on his shoulder when she decided to bite him out of excitement. Her therapies have gone well this week too. Her stamina at walking seems to be really improving. Now if we can get her balance to get there, she should have the skills needed to walk. We are moving our horses down near our house so that should really help us to get out to do therapeutic riding more often. I think Amanda's balance will get really good if we can do therapeutic riding at least 4-5 times per week.

Katie is doing really well. She continues to excel in school. She starts cheerleading with her best friend the first of April. She is also excited about having the horses 5 minutes from the house. It took a long time on the waiting list to get in, but it will be worth it.

We are starting to plan for the Azalea Festival event in April. Our friends from Paws4people will be coming down with several dogs and we will have a booth at the event to try to raise money. A local restaurant, South Beach Grill, has also been generous enough to help us with fundraising and awareness that Sunday. They will donate a portion of all proceeds that day to Paws4people. We are blessed that there are such nice businesses in the community that want to help us out.

We hope you are all doing well! God Bless!
Susan