Angiogram Tomorrow

We met with the pediatric vascular neurologist today. It went basically well but it is sometimes hard to hear what they have to say. The doctor was nice but it is still hard to discuss everything. She told us that aneurysms in kids are very rare. At Hopkins, they only see about 2 kids per year with aneurysms. So Amanda's case is super rare - to have a kid with a previous hemispherectomy that has an aneurysm. At UCLA, they told us she was the first kid to undergo a hemispherectomy and get an aneurysm.

The doctor also told us that the aneurysm she has looks like a widened blood vessel and not a cherry. The definitive test will be the angiogram tomorrow. Once they see the aneurysm up close, they will know a lot more of how to move forward. Amanda is super silly again today. At the moment, she is giggling uncontrollably as Nana is trying to get her to drink milk. She continues to be such an amazing, silly, and fun kid.

As I mentioned previously, the angiogram is at 1:00 tomorrow and should be finished by 2:30. We will then be in recovery until probably 8:30 or so. I will try to post something tomorrow night if possible.

Thanks so much for all the prayers for Amanda. Prayers are the strongest medicine.

God Bless,

Susan