Summer 2010 Update

Amanda has been having a good summer for the most part. She really enjoys swimming, going to the beach, riding horses, etc. Last night we had a picnic on the beach and we swam in the afternoon and again after we got back from the beach. She is almost crawling independently now. I am hoping she will meet this milestone in the next month or so. She is walking great with ELLIE and loves the new harness.

The whole family, including ELLIE, went to a wedding in Florida in June. ELLIE behaved wonderfully, as we knew she would. Amanda on the otherhand was a bit boisterous but she had fun. The picture of us all dressed up is from the wedding. The wedding was outside so we were able to take Amanda safely (or so we thought). The wedding was lots of fun but we ended up getting a norovirus type illness and spent the last half of the trip quite ill. A bunch of the wedding guests got the illness and some ended up in the hospital. Our whole family (including my parents who did not attend the wedding) came down with it. The good news is that since Amanda go through the virus without throwing a major seizure, she is now cleared to try a vaccine. So, we will be meeting with the pediatrician soon to find out where and how to start the vaccine process.

Next Monday, July 26, Amanda goes in for her MRI to make sure her aneurysms and fistulae are still stable. Please keep her in your prayers. So far, they have remained stable so we pray that continues.

Amanda and ELLIE continue to make great progress together. The rest of the family is doing well too and enjoying the summer. I will post again after her MRI.

Susan