Monday, November 28, 2011

Still doing well!

Amanda continues to do well. She is still having some seizures here and there but nothing too bad. The VNS seems to really help her, especially when you apply the magnet and it jumps up a level. She is having a few withdrawal issues as we switch from diazapam to clobazam but the seizures are much improved. The medicine switch will allow us to go to a more realistic medicine schedule again (3 per day) while adding some seizure control benefits as well. I am optimistic that the seizures will go away altogether as we tweak the settings on the VNS over the next few weeks and months. Very thankful for answered prayers and the blessing of having a much more stable child around! God is Good!!!!
Susan

2 Comments:

At 10:11 PM, Anonymous Anonymous said...

Dear Danny & Susan,
Please know we continue to send our love and prayers as your precious Amanda recovers from her surgery. How wonderful it was that you were all able to be home for a blessed and special Thanksgiving together! Please give your sweet, beautiful daughters hugs from us and give our best to your wonderful parents. You two are quite amazing parents ~ continue to stay strong!
Much Love To You All ~
Michael, Jenny & the Family

 
At 9:17 PM, Blogger Susan Hermanson said...

Thanks Michael, Jenny and Family! We could feel your prayers and they were very effective :) Thanks so much! We miss you but we won't be down to Florida for Christmas to see you this year. We are looking forward to a quiet Christmas at home instead. Love you!
Susan

 

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