Mixed News

The angiogram is done and the procedure itself went well. I have to admit though if you ever want a tough task, try to get a 4 year old to lay still for 6 hours and then to stay calm for another 48. The angiogram showed that Amanda has 2 aneurysms, the one they expected which was 5 mm and a very small 2 mm aneurysm. They are right next to each other, and are called fusiform or "psuedo aneurysms." The good news is that they have been there a few years and appear to be stable. The aneurysms are also a shape that has a lower rupture risk.

The doctors also found some "surprises" while doing the procedure. We knew something was up because the procedure took a lot longer than expected. They found several dural arteriovenous fistulas and dural sinus fistulas. On a scale of 1-4 with 4 being the worst, Amanda's were all toward the 1 range, so that was good news. The presence of these problems may indicate an underlying clotting disorder so we will likely be doing additional blood tests this week. We won't know for sure what the plan is until we hear again from the doctors. They meet today and discuss her case as a group. We will know more after they meet in terms of what this all means and what we do moving forward.

Sorry for the late posting. We got back after 11pm and then had to try to keep Amanda calm and still so the artery wouldn't reopen. She was absolutely wild so it was quite a task. We finally got her quiet sometime after 1am. We will let you know when we hear anything regarding the next steps.....

Thanks for the prayers. God Bless,
Susan