February 2014 Update

So the past few years have been years of change in Amanda's life. She now lives in Burgaw on a 70 acre horse farm with her sister (Katie), mom (Susan), and her new step dad, (Ritner). Susan's parents also live at the farm. At the farm Amanda enjoys therapeutic horseback riding, spending time with her service dog ELLIE, driving her wheelchair and walking all over the place, and laughing like crazy. She continues to be a very happy, well adjusted child who absolutely loves life and lives every day to the fullest.She still loves the beach, absolutely goes crazy happy riding jet skis, enjoys riding the Polaris Ranger at the farm, and still loves her animals and her people. Amanda has done very well over the last two years. She is 9 years old, and will turn 10 in May. She has had some seizure cycles a couple times per year and has also been hospitalized for everything from a resistant staff infection, to pneumonia, to seizures but each time her tenacity, strength, sense of humor, and resilience shine through. Medically, her aneurysms have remained stable, her seizures come and go but have seemed to occur less frequently this year than last, she is growing like a weed, and she is doing great intellectually and physically. She loves to tease and laugh. Her verbal speech is still limited but she communicates quite effectively with pictures, yes/no questions, and signing. We are blessed to have this amazing little child in our lives as she makes all of us better people from having the privilege to be around her. I post a lot on Facebook about her updates but I will try to remember to post here more often. God Bless and thanks for checking in on our precious little angel!