Pretty Good News

We talked with Dr Jordan and Dr Gailloud today and the news is about as good as it could be given yesterday's findings. The aneurysms are deemed stable and their fusiform shape is less prone to rupture, so the game plan is to leave them alone and follow them with MRI studies every 6 months. As long as they don't start to grow, they can be left alone indefinitely.

The same is true with the fistulas. At present time, they are "benign", meaning they are not likely to cause problems in their current condition and can be left alone and tracked over time. They are not visible on an MRI so as long as they stay that way, they should be fine and not cause problems. We will also track them with an MRI and no visibility = good news.

So the game plan is to stick around until Monday so that Amanda can have blood drawn for clotting tests on both Friday and Monday. They have to take so much blood that they can't do it in one draw, so they split it up into two and left a few days in between for recovery. Her blood counts were excellent in the blood draw before the angiogram but she did lose blood after the angiogram when her artery bled so we are giving her a few days to recover from that before the first draw and in between draws just to be safe.

The doctors and nurses have been excellent to work with here and seem to be truly interested in helping Amanda. We are blessed to have such good doctors at each place we go. Dr Wooten from Raleigh Neurology has been wonderful and our team of doctors at UCLA are all wonderful as well.

We are also blessed to have wonderful family and friends like you. Thanks for thinking of us. We will continue to keep you updated. Our current plan is to head for Wilmington on Monday, as it will take a week or more for the results of the blood test to come in. And for the record, it is nearly impossible to keep a 4 year old still and quiet! Have a blessed day.

Susan