10/4 Update

So I thought we were going to get through a day with no seizures, but she had one at 8:22 pm. She only had one yesterday too (although she created a lot of excitement when she got silly eating and chocked on her food - but she is alright and that is what matters most). Despite her one myoclonic seizure today, she had a really good day. She never ceases to amaze me how great of an attitude she has and how much she enjoys life.

She and her CAP C worker, Tasha, were rocking out to kid's music tonight while I ran my 2 miles on the treadmill and she was dancing on the floor :). It was really cute! Amanda just loves music and her favorite song is "She'll Be Coming Round the Mountain." She also loves to play hide and go seek and to snuggle whenever possible. We spent time a lot of time tonight playing, snuggling and eating (she is a night eater lol) before she fell asleep in my lap. She is now sound asleep and looks like a little angel laying in bed.

We are tying down loose ends and getting ready for the trip to UCLA. We are confident that we are getting her the best possible help. The surgery six years ago gave us a gift of six great years that we wouldn't have had otherwise, so maybe this trip will give us an even better outcome. We know that "we can do all things through Christ who strengthens us" .... so we feel as prepared as we can be about the upcoming trip and what lies ahead. It is a little easier facing a known process rather than an unknown one and we should have some good answers by 10/14. I will keep people posted through the blog as we learn information at UCLA.

Thanks for all of the prayers and the support. God is good, all of the time and we know He loves Amanda dearly. Have a blessed day.
Susan