Still waiting...

As weird as it is to say and think this, we are still waiting for a seizure. The doctors need for her to do one on EEG so that they can determine where they are coming from. Most of the last 7 years of my life have been spent hoping we wouldn't see another seizure so it is really strange to be waiting around hoping for one to happen. We have weaned diazepam back to the level she was at before she caught her cold and started having seizures and still nothing. She has played on the iPad most of day and we had visitors today too, a former student from UNLV and her son. It was so nice of them to stop by. Tuesday we were blessed to have lunch with another old friend from UNLV. It was great to catch up.

The game plan moving forward is to still try to catch a seizure on EEG and then do the MRI. If that all happens before our flight on Saturday, that would be very helpful. Otherwise, we will have to figure out how to proceed. Dan will definitely go home on Saturday but Amanda and I may need to stay a little longer. I will continue to keep everyone updated. I made the mistake of asking what was the longest they have had someone under 24 hour EEG trying to capture a seizure and the answer was 38 days... Yikes! They actually said it is pretty common for it to take a while but hopefully Amanda won't be anywhere near 38 days. We actually have had some really special mommy daughter time in the hospital. There are no distractions so we can just enjoy playing and snuggling most of the day. Dan has a nasty cold so he hasn't been around at all today. Katie is handling being in NC quite well. She has her first dance of the year tomorrow night so she is excited about that. Her volleyball team lost on Tuesday in the semi-finals od e tournament to the top rated team. They had a good season though and Katie really enjoyed all of it. Sh e has one more week of volleyball practice so the kids that are returning next year can have a good foundation together and then she will set her sights on basketball.

You can probably guess that Amanda is sleeping like a little angel right now. She will be up one more time tonight before she goes to sleep for good. She is happy that her IV stayed clear today so she didn't have to get stuck again. Yesterday they stuck her six times before they finally got a new IV in. By the time they finished she just ignored them and didn't even cry. She is an amazing kid and the love of our lives, as is her sister Katie. We are blessed with two wonderful girls. Thanks for keeping Amanca and our family in your prayers. We appreciate that very very much! May God Bless you and yours. Goodnight.
Susan