10/29/11 Update

So this week has had its peaks and valleys. We went back up on meds because seizure control has not been great. She had a big seizure on Wed afternoon, as well as two smaller ones before that. She has been better since the med increase but is still not quite the kid we took to California. The storms coming through are not helping so we have also had to give Motrin a few times to combat migraines. Hopefully, this next week will be a little calmer on the weather side and it will allow us to put this most recent flare up back under control. On the flip side, she has been doing much better at walking independently! Today, she is having a good day. As I write this, she is scooching into the office to check out what I am doing and is cracking herself up. I think she may think she is sneaking up on me. Or she is looking forward to her favorite activity of pulling all the books off the bookshelf and ripping out the pages (we keep our important books on higher shelves.

ELLIE has been very patient and very attentive this week. She and Amanda have an amazing bond and she is always there for her. We couldn't have asked for a better service dog. She is like a little mother hen to Amanda most of the time.

We go see Amanda's neurologist on Friday 11/4, so we will get to ask a lot of questions then regarding flu shot, seizure meds, final UCLA report, etc. I will keep everyone posted. In the meantime, we are enjoying lots of snuggles and trusting in God's plan for her. We remain very optimistic that this cycle of seizures will go away and she will continue to do well for a very long time. Have a great weekend! God Bless!